Supplier
NIH/NIDDK
Years Available
1988 to present
Periodicity
Annual
Mode of Collection
Abstraction of administrative/claims and other data: data for the USRDS database are compiled from existing data sources in CMS, CDC, and elsewhere.
Description
The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States. USRDS staff collaborate with staff from the Centers for Medicare & Medicaid Services (CMS), the United Network for Organ Sharing, and the ESRD networks, sharing data sets and actively working to improve the accuracy of ESRD patient information. USRDS has six goals: (1) to characterize the ESRD population; (2) to describe the prevalence and incidence of ESRD, along with trends in mortality and disease rates; (3) to investigate relationships among patient demographics, treatment modalities, and morbidity; (4) to identify new areas for special renal studies and support investigator-initiated research; (5) to provide data sets and samples of national data to support research studies by the Special Studies Center; and (6) to report the costs of ESRD treatments and total burden of ESRD program in the United States.
Population Covered
Medicare and non-Medicare ESRD patients, Medicare CKD patients.