University of Minnesota
1977 to present
Mode of Collection
Administrative data are submitted by State IDD agencies via an online survey or a word document that mirrors the online survey.
RISP is an Administration on Intellectual and Developmental Disabilities (AIDD) Project of National Significance that maintains longitudinal records of long-term supports and services (LTSS) for people with intellectual and developmental disabilities (IDD). RISP collects and reports on national and state level data on the history of institutionalization, deinstitutionalization, and the development of community-based LTSS for people with IDD in the 50 states and the District of Columbia. The RISP project is housed at the University of Minnesota's Institute on Community Integration and advised by the National Association of State Directors of Developmental Disabilities Services Research Committee and a National Advisory Board. The RISP project, operating under a variety of names and funding sources, has collected and reported data of LTSS for people with IDD since 1977 and references historical records dating back to the 1880 U.S. Census.
Medicaid and state-funded LTSS managed by, or under the auspices of, state IDD agencies.