Engage patients as partners in care and improvement efforts

Patient and caregiver feedback is key to continuing to build and improve the health literate organization. Health literate care systems engage patients in their health care and support patients and caregivers as partners in quality improvement. See examples of measures of patient experiences with their care that capture patients’ accounts of how well their health literacy needs are being met.

Patient Experience of Care Measures

Care Model Elements Patient Experience Measure
Health care organization Collect multiple measures of patients’ experience of care in order to assess and adapt to the collective impact of their health literacy challenges
Self- management support My provider always asks me to describe how I will follow instructions about what to do to take care of an illness or health condition.****
Delivery system design

In the last twelve months, I talked with someone in my provider’s office at each visit about all the prescription medicines I was taking.*

In the last twelve months, I got reminders from my provider’s office (e.g., about tests, treatments, or appointments) between visits.*

Decision making My provider always involves me in decisions as much as I want.**
Clinical Information Systems I have online access to my personal health information (care received, test results, and upcoming appointments). **
Community linkages Over the past six months when I received care for my chronic condition, I was encouraged to attend programs in the community that could help me. ***

* CAHPS® measure, accessed at https://cahps.ahrq.gov/

** Healthy People 2020 measure at http://healthypeople.gov

*** Patient Assessment of Chronic Illness Care (PACIC) measure http://www.improvingchroniccare.org/downloads/2004pacic.doc.pdf [PDF - 94 KB] External Link: You are leaving Health.gov

**** CAHPS and Healthy People 2020 measures