Angioma Alliance is a non-profit international patient advocacy organization created by people affected by cavernous angioma (cerebral cavernous malformation). The organization works to inform and support individuals affected by CCM while facilitating improved diagnosis and management of the illness through education and research.
A patient information brochure is available in English and Spanish through the Web site. A quarterly newsletter is available online or by mail that features information on latest research findings and ongoing studies, news of the organization's activities, and information of particular interest to those affected by cavernous angioma.
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