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Incontinentia Pigmenti International Foundation, Inc.


Contact Information

Susanne Bross Emmerich, Executive Director
30 East 72nd Street

New York, NY 10021

212-452-1231 (Voice),
212-452-1406 (FAX),

Internet Resources


Abstract

Incontinentia Pigmenti (IP) is a genetic disease of the skin, hair, teeth and central nervous system. The condition was named because of the way the skin looks under the microscope. "Bloch-Sulzberger Syndrome" is another name commonly used for IP. Other names are: Bloch-Siemens incontinentia pigmenti, melanoblastosis cutis linearis, and pigmented dermatosis, Siemens-Bloch type. Founded in 1995, IPIF is a non-profit organization guided by a Scientific Advisory Council, whose members are acknowledged experts in their fields. IPIF consists of patients, physicians, educators, parents, relatives, and volunteers who are striving to take leadership in supporting research, education, and funding. IPIF is a source of reliable information and support for patients and families in the United States and worldwide. Its mission is to encourage and support research on IP, and to provide family support and education.

Publications


Keywords

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Notes

2.14.13: Revised abstract and acronym - RY

Audit

Date Entered: 3/24/1999
Date Edited: 2/14/2013
Date Revised: 2/8/2013
Health Referral Number: HR3105
Accession Number:

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