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Hydrocephalus Association

Contact Information

Karima Roumila, MPH
4340 East West Highway, Suite 905
Bethesda, MD 20814

1-888-598-3789 (Voice - Toll-free),
301-202-3811 (Voice),
301-202-3813 (FAX),

Internet Resources


Founded in 1983, the Hydrocephalus Association is a national non-profit organization. Our mission is to eliminate the challenges of hydrocephalus by stimulating innovative research and providing support, education and advocacy for individuals, families and professionals dealing with the complex issue of the condition. Families are empowered with educational materials, informed about the latest research, and have access to quality health care. The association advocates for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.


Hydrocephalus Booklets and Fact Sheets: All booklets are available online for free: Pathways, a monthly e-newsletter and quarterly printed:


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2.14.13: Publications noted at request of org. Revised abstract - RY


Date Entered: 1/1/1998
Date Edited: 2/14/2013
Date Revised: 2/8/2013
Health Referral Number: HR2829
Accession Number:

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