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NIH Office of Rare Diseases Research

Contact Information

Henrietta Hyatt-Knorr
6100 Executive Boulevard
Room 3A07, MSC 7518
Bethesda, MD 20892-7518

301-402-4336 (Voice),
301-480-9655 (FAX),

Internet Resources


The Office of Rare Diseases Research (ORDR) was established in 1993 within the Office of the Director of the National Institutes of Health (NIH), the Federal focal point for biomedical research. ORDR coordinates and supports rare diseases research, responds to research opportunities for rare diseases, and provides information on rare diseases. Public Law 107-280, the Rare Diseases Act of 2002, established the ORDR by statute. The goals of ORDR are to stimulate and coordinate research on rare diseases and to support research to respond to the needs of patients who have any one of the more than 7,000 rare diseases known today.


To receive periodic updates and important news items from ORDR, send your request to and include contact name, organization name (if applicable), and email address.


You may search for other related entries in the database under the following topics.


updated contact info, abstract-MP 3.27.13: Revised title per org's request - RY


Date Entered: 11/1/1997
Date Edited: 3/28/2013
Date Revised: 11/7/2007 12:51:06 PM
Health Referral Number: HR2599
Accession Number:

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