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Support Organization for Trisomy 18, 13 and Related Disorders

Contact Information

Barb Vanherreweghe
2982 South Union Street
Rochester, NY 14624-1926

1-800-716-7638 (Voice - Toll-free)
585-594-4621 (Voice)
585-594-1957 (FAX)

Internet Resources


Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in trisomy 18, 13, and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing. SOFT is committed to respect a family's personal decision in alliance with a parent-professional partnership. Annual Conference with free medical clinics.


T18 Brochure; T13 Brochure; SOFT Brochure; T18 Guidebook; T13 Guidebook; Care of the Infant and Child with T18, T13; Annual Newsletter. Softly Spoken, Softly Written poetry book. There are charges for publications.


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Date Entered: 11/1/1997
Date Edited: 12/3/2012
Date Revised: 3/13/2012
Health Referral Number: HR2572
Accession Number:

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