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Noonan Syndrome Support Group, Inc.


Contact Information

Wanda Robinson, Founder
P.O. Box 145
Upperco, MD 21155

1-888-686-2224 (Voice - Toll-free),
410-374-5245 (Voice),

Internet Resources


Abstract

Noonan Syndrome Support Group, Inc. (NSSG) is committed to providing support, current information, and understanding to those affected by Noonan syndrome, a condition often associated with congenital heart disease and short stature. NSSG is intended for people whose lives are touched by Noonan Syndrome, and want to exchange experiences, support, networking, and information.

Publications

Noonan Syndrome News, quarterly newsletter; Members have access to the most recent articles published on Noonan Syndrome.

Keywords

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Notes

5.24.11: Removed "Noonan's Syndrome" since rare disease w/1 doc. Kept "heart diseases" as topic. - AR

Audit

Date Entered: 10/1/1997
Date Edited: 3/28/2013
Date Revised: 11/14/2006 11:30:57 AM
Health Referral Number: HR2560
Accession Number:

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