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Noonan Syndrome Support Group, Inc.

Contact Information

Wanda Robinson, Founder
P.O. Box 145
Upperco, MD 21155

1-888-686-2224 (Voice - Toll-free),
410-374-5245 (Voice),

Internet Resources


Noonan Syndrome Support Group, Inc. (NSSG) is committed to providing support, current information, and understanding to those affected by Noonan syndrome, a condition often associated with congenital heart disease and short stature. NSSG is intended for people whose lives are touched by Noonan Syndrome, and want to exchange experiences, support, networking, and information.


Noonan Syndrome News, quarterly newsletter; Members have access to the most recent articles published on Noonan Syndrome.


You may search for other related entries in the database under the following topics.


5.24.11: Removed "Noonan's Syndrome" since rare disease w/1 doc. Kept "heart diseases" as topic. - AR


Date Entered: 10/1/1997
Date Edited: 3/28/2013
Date Revised: 11/14/2006 11:30:57 AM
Health Referral Number: HR2560
Accession Number:

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