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Xeroderma Pigmentosum Society

Contact Information

Caren and Dan Mahar
437 Snydertown Road
Craryville, NY 12521

518-851-2612 (Voice)
518-851-2612 (FAX)

Internet Resources

Abstract

The Xeroderma Pigmentosum Society was founded to raise awareness about XP, a life-threatening, sun-sensitive, genetic disorder; to provide support to patients and their families through information, protection and services; and to promote research for a cure. XPS also offers a unique, international summer camp for families conducted in a UV-safe environment.

Publications

"Understanding XP"; newsletter, "XP Report" all at no charge.

Keywords

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Notes

Audit

Date Entered: 10/1/1997
Date Edited: 12/10/2012
Date Revised: 11/14/2006 11:30:57 AM
Health Referral Number: HR2526
Accession Number:
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