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Shwachman-Diamond Syndrome Foundation

Contact Information

Debbie Kadel, President
127 Western Avenue

Sherborn, MA 01770

1-888-825-7373 (Voice - Toll-free), 1-888-825-SDSF

Internet Resources


The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization is to support families dealing with this rare disease, to advocate research, disseminate medical information and raise public awareness.


Books, pamphlets and periodicals/newsletters are available. Italian, Dutch and French language materials are also available. There is no charge for items.


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Org formerly known as Shwachman-Diamond Syndrome International. /js


Date Entered: 10/1/1997
Date Edited: 2/7/2013
Date Revised: 3/13/2012
Health Referral Number: HR2515
Accession Number:

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