The Cushing's Support and Research Foundation was established in 1995 to provide information and support to Cushing's patients and their families. The Foundation was incorporated in the state of Massachusetts as a non-profit organization and is an Associate Member of NORD, the National Organization for Rare Disorders. The CSRF has a Medical Advisory Board consisting of very experienced surgeons and endocrinologists who are world renowned for their expertise on Cushing's. The CSRF is primarily funded by membership and personal donations. The CSRF maintains a database of many present and past Cushing's patients willing to support others.
Publications include a newsletter (sent 3 times per year), pamphlets, and a fact sheet about Cushing's Syndrome.
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