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VHL (Von Hippel-Lindau) Family Alliance

Contact Information

Joyce Wilcox-Graff
2001 Beacon Street, Suite 208
Boston, MA 02135-7787

1-800-767-4845 (Voice - Toll-free)
617-277-5667 (Voice)
858-712-8712 (FAX)

Internet Resources


The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. Local family support chapters exist in regions of the U.S. Local chapter meetings are scheduled periodically. International VHL Support Organizations are established on six continents.


Serial Publications: VHL Family Forum (quarterly). General Publications: The VHL Handbook; Your Family Health Tree; audiocassettes; videocassettes.


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Date Entered: 10/1/1997
Date Edited: 12/3/2012
Date Revised: 10/22/2006 3:24:52 PM
Health Referral Number: HR2488
Accession Number:

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