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Maple Syrup Urine Disease Family Support Group

Contact Information

Sandy Bulcher
9517 Big Bear Ave
Powell, OH 43065

614-389-2739 (Voice),

Internet Resources

Abstract

The Maple Syrup Urine Disease (MSUD) Family Support Group provides opportunities for support and personal contact for those with MSUD and their families. MSUD, which derives its name from the distinct sweet smell of the urine, affects the way the body metabolizes certain components of protein. The purpose of the support group, which began in 1983, is to gather and distribute information on MSUD, strengthen the liaison between families and professionals, and encourage research and newborn screening for MSUD. The organization sponsors biennial symposia. The group develops resources to meet the goals of support and education.

Publications

The group publishes a newsletter, brochures, and distributes information for new families and professionals.

Keywords

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Notes

updated address. MP

Audit

Date Entered: 9/1/1997
Date Edited: 3/19/2013
Date Revised: 10/22/2006 3:24:52 PM
Health Referral Number: HR2432
Accession Number: DP92A1181
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