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Sotos Syndrome Support Association


Contact Information

Information
P.O. Box 4626

Wheaton, IL 60189

1-888-246-7772 (Voice - Toll-free)

Internet Resources


Abstract

The Sotos Syndrome Support Association (SSSA) was organized in 1988 to provide a support network for families and individuals affected by the syndrome. Sotos syndrome, also known as cerebral gigantism, is a neurological brain-based disorder resulting in physical and mental developmental delays in children. The goals of the SSSA are to provide a social support environment for families and individuals with Sotos syndrome; increase public awareness and education about the disorder; and provide opportunites for professionals working with affected individuals to collect and share data for research. The SSSA has members across the United States, Canada and Great Britain, and sponsors an annual conference.

Publications

The SSSA publishes a quarterly newsletter for its members, as well as a bibliography of articles and books on Sotos syndrome. Planned publications include an educational brochure.

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Notes


Audit

Date Entered: 9/1/1997
Date Edited: 2/7/2013
Date Revised: 10/22/2006 3:24:52 PM
Health Referral Number: HR2419
Accession Number: DP91A0950

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