Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas,Texas, dedicated to improving the quality of life for people with facial differences and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to individuals and families affected by facial differences.
CCA has published thirteen in the series of 'A Guide to Understanding' booklets for parents, which explain craniofacial conditions and their treatment. The booklets cover Apert Syndrome, Cleft Lip and Palate, Craniosynostosis, Crouzon Syndrome, Facial Palsy, Fibrous Dysplasia, Hemangiomas, Hemifacial Microsomia, Microtia, Moebius Syndrome, Pfeiffer Syndrome, Pierre Robin Sequence and Treacher Collins Syndrome and are written in easy-to-understand text in question/answer format. In addition, a quarterly newsletter is published to inform readers of CCA activities as well as educate families, donors and interested parties of the latest in craniofacial treatment. The newsletter also addresses issues affecting not only the craniofacial patients but their siblings and parents as well.
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