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American Syringomyelia & Chiari Alliance Project, Inc.


Contact Information

Jamie Mayhan
P.O. Box 1586
Longview, TX 75606-1586

1-800-272-7282 (Voice - Toll-free), 1-800-ASA-P282
903-236-7079 (Voice),
903-757-7456 (FAX),

Internet Resources


Abstract

The American Syringomyelia Alliance Project Inc. (ASAP), is a national nonprofit organization founded in 1988. Its main goals are to be a support network and information clearinghouse for people who have syringomyelia, a rare spinal cord disorder, a source of information and support for Chiari Malformations, and to support future research. ASAP is also working towards coordinating the efforts of organizations in the U.S. working to improve the lives of those challenged by Syringomyelia or Chiari Malformations; increase public awareness of the existence of the disorders and the associated devastation; secure a uniform, national Medicare policy providing coverage for current and future treatments of the disorders; inform sufferers of the latest efforts of doctors who are treating the disorders; and urge research efforts to find all causes, to develop new treatments, and to improve existing treatments.

Publications

Publications include a newsletter, brochure and varied articles on syringomyelia.

Keywords

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Notes

Annual convention held each year in June; location varies.

Audit

Date Entered: 9/1/1997
Date Edited: 2/22/2013
Date Revised: 7/31/2012
Health Referral Number: HR2378
Accession Number: DP91A0909

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