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Sturge-Weber Foundation

Contact Information

Karen Ball, President
P.O. Box 418
Mt. Freedom, NJ 07970-0418

1-800-627-5482 (Voice - Toll-free),
973-895-4445 (Voice),
973-895-4846 (FAX),

Internet Resources

Abstract

The Sturge-Weber Foundation (SWF) is a non-profit foundation serving people with Sturge-Weber syndrome (also known as encephalotrigeminal angiomatosis), Klippel Trenaunay (KT) and Port Wine Stains (PWS), their families, and the medical and professional community. The Foundation acts as a clearinghouse for information and to facilitate fund raising for research into SWS, KT and PWS. The Foundation provides telephone counselling in addition to an e-mail support group on the Internet

Publications

Articles, pamphlets and booklets on Sturge-Weber syndrome. SWF: The Sturge-Weber Foundation Newsletter--periodic, articles on treatment, medical updates, and information relating to Sturge-Weber syndrome.

Keywords

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Notes

KEEP: Do not inactivate per NHIC Call Center

Audit

Date Entered: 9/1/1997
Date Edited: 11/30/2012
Date Revised: 10/22/2006 3:24:52 PM
Health Referral Number: HR2360
Accession Number: DP91A0891
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