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Aplastic Anemia & MDS International Foundation, Inc.


Contact Information

John Huber, Executive Director
100 Park Avenue, Suite 108
Rockville, MD 20850

1-800-747-2820 (Voice - Toll-free),
301-279-7202 (Voice),
301-279-7205 (FAX),

Internet Resources


Abstract

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is a nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world. Programs include toll-free and online support from patient educators and peers, free educational materials and online learning, patient and family conferences, newsletters, clinical trials information, and volunteer-led community groups who raise awareness and support for AA&MDSIF programs.

Publications

Publications include a educational newsletter and other booklets for families of aplastic anemia MDS & PNH patients and the general public.

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Notes

KEEP: Do not inactivate per NHIC Call Center

Audit

Date Entered: 9/1/1997
Date Edited: 10/21/2012
Date Revised: 6/28/2007
Health Referral Number: HR2347
Accession Number: DP91A1034

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