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Ehlers-Danlos National Foundation


Contact Information

Cindy Lauren- CEO/President
1760 Old Meadow Road, Suite 500
McLean, VA 22102

703-506-2892 (Voice),
703-506-3266 (FAX),

Internet Resources


Abstract

The Ehlers-Danlos National Foundation's focus is to provide emotional support to patients and their families, to educate health professionals and researchers about Ehlers-Danlos syndrome (EDS), and to teach patients how to deal with their individual problems. EDNF distributes reprints of articles on EDS and related issues. Call for a newsletter and a telephone network. The Foundation sponsors annual learning conferences.

Publications

The Ehlers-Danlos National Foundation distributes articles on EDS and related issues. Serial publication: Loose Connections (newsletter), quarterly.

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Notes

KEEP: Do not inactivate per NHIC Call Center

Audit

Date Entered: 8/1/1997
Date Edited: 3/6/2013
Date Revised: 8/7/2006 10:54:21 AM
Health Referral Number: HR2220
Accession Number: DP91A0879

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