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National Foundation for Ectodermal Dysplasias

Contact Information

Mary Kaye Richter
410 East Main
P.O. Box 114
Mascoutah, IL 62258-0114

618-566-2020 (Voice)
618-566-4718 (FAX)

Internet Resources


The National Foundation for Ectodermal Dysplasias, (NFED), was organized in order that accurate information on ectodermal dysplasias (ED) would be available to patients and their families dealing with this rare disorder. The Foundation's goals are to locate parents of ED children or adults affected by ED and to provide them with information and support, to assist the medical community in treating ED patients, to distribute financial assistance for medical and dental care and scholarships when possible, to aid families with the acquisition of insurance benefits, to provide referral services, and to assist with research projects. NFED is funded by donations.


Booklets: A Family Guide to Ectodermal Dysplasias; A Dental Guide to the Ectodermal Dysplasias; Skin, Hair and Nails Guide to the Ectodermal Dysplasias; EENT Guide to the Ectodermal Dysplasias; A Multi-Syndrome Guide to the Ectodermal Dysplasias. Serial publication: Newsletter, bi-monthly--news of family meetings, health tips, comments by members of the advisory board, a calendar of events and other pertinent information.


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Date Entered: 7/1/1997
Date Edited: 3/22/2013
Date Revised: 8/7/2006 10:54:21 AM
Health Referral Number: HR2200
Accession Number: DP91A0861

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