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Debra of America, Inc.


Contact Information

Executive Director
16 East 41st Street, 3rd Floor

New York, NY 10017

1-887-88-DEBRA (Voice - Toll-free), Patient Information
212-868-1573 (Voice),
212-513-4099 (FAX),

Internet Resources


Abstract

The Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA) was formed in 1979 as a self-help group for persons suffering from epidermolysis bullosa (EB), a group of inherited skin disorders characterized by the formation of blisters after mild trauma. Staff provide professional and emotional guidance, raise funds for research, and help administer public and professional education. DEBRA of America and its sister organizations in Australia, England, New Zealand, and Israel are dedicated to improving public and professional understanding and awareness of EB.

Publications

Booklets describing the disease and the Association are available. Serial publication: DEBRA Newsletter, twice yearly--news on Association activities and research results.

Keywords

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Notes

Updated contact info --MP 9.7.12. Added Support Groups in Super C. - DK

Audit

Date Entered: 7/1/1998
Date Edited: 3/6/2013
Date Revised: 6/19/2006 12:48:53 PM
Health Referral Number: HR1152
Accession Number: DP91A0628

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