National  Health Information Center 

Health Information Resource Database

[Inclusion of an information resource in this database does not imply endorsement
by the U.S. Department of Health and Human Services.]


Tuberous Sclerosis Alliance


Contact Information

President
801 Roeder Road
Suite 750
Silver Spring, MD 20910

1-800-225-6872 (Voice - Toll-free)
301-562-9890 (Voice)
301-562-9870 (FAX)

Internet Resources


Abstract

The Tuberous Sclerosis Alliance (TSA), formerly the National Tuberous Sclerosis Association (NTSA), was established in 1974 to provide fellowship, generate awareness, pursue more knowledge and provide hope to those that shared the common bond of tuberous sclerosis. The Association's goals include identification of persons with this disorder; identification of knowledgable individuals in the helping professions; education of patients' families, professionals, and the public; promotion of research; development of a national medical registry; and communication among families of tuberous sclerosis patients. NTSA has established a network of area representatives providing group meetings and telephone contact between families.

Publications

NTSA publishes fact sheets, brochures, booklets for parents, publications lists, and articles on various topics related to tuberous sclerosis. Serial publication: Newsletter, quarterly.

Keywords

You may search for other related entries in the database under the following topics.


Notes


Audit

Date Entered: 6/1/1998
Date Edited: 12/3/2012
Date Revised: 4/6/2013
Health Referral Number: HR0816
Accession Number: DP91A0198

back buttonNHIC Home Page