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Prader-Willi Syndrome Association - USA

Contact Information

Jana Lee-Heinemann, Executive Director
8588 Potter Park Drive, Suite 500
Sarasota, FL 34238

1-800-926-4797 (Voice - Toll-free)
941-312-0400 (Voice)
941-312-0142 (FAX)

Internet Resources


Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome, a genetic cause of life-threatening obesity in children.


Bimonthly newsletter, The Gathered View, and publications and audiovisual presentations about PWS.


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Date Entered: 6/1/1998
Date Edited: 2/7/2013
Date Revised: 7/31/2012
Health Referral Number: HR0810
Accession Number: DP91A0196

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