National Health Information Center 

Health Information Resource Database

[Inclusion of an information resource in this database does not imply endorsement
by the U.S. Department of Health and Human Services.]

Dysautonomia Foundation

Contact Information

David Brenner, Executive Director
315 West 39th Street, Suite 701
New York, NY 10018

212-279-1066 (Voice)
212-279-2066 (FAX)

Internet Resources

Abstract

The Dysautonomia Foundation is an international organization created in 1951, to provide services for patients with Familial Dysautonomia, a Jewish genetic disorder. We support a Treatment and Evaluation Center at NYU Medical Hospital in NYC as well as a satellite center at Hadassah Hospital - Israel. The Foundation funds research into FD leading to a cure. It also offers support services to families including information on Treatment and Research.

Publications

The Foundation publishes a treatment manual for parents and physicians, two informational brochures, a booklet for children, and distributes medical reprints and treatment bulletins. Serial publications: annual newsletter; Fund Raising journal, annual; Dysautonomia Research Report, annual.

Keywords

You may search for other related entries in the database under the following topics.

Notes

Audit

Date Entered: 5/1/1998
Date Edited: 3/6/2013
Date Revised: 9/27/2011
Health Referral Number: HR0425
Accession Number: DP91A0369
back buttonNHIC Home Page